redlilyfoundation.org
Red Lily Foundation | News
http://redlilyfoundation.org/news
Patient Point of View. Parent Point of View. Building a good Foundation. Milestones passed on the way to creating Red Lily Foundation:. Run To Stand 5K. Sponsored Symposium at American Autonomic Society Conference. Style To Stand Fundraiser sponsored by Minardi Salon. Run to Stand 5K The inaugural event kicks off. Website Live and accepting donations. Facebook Run to Stand 5K event page goes live. Dr Satish R. Raj Joins our Medical Council. New Jersey non-profit organization status granted. Red Lily Foun...
redlilyfoundation.org
Red Lily Foundation | Patient Point of View
http://redlilyfoundation.org/what-is-pots/patient-point-of-view
Patient Point of View. Parent Point of View. 5K Run/Walk To STAND Was a GREAT SUCCESS! Visit EVENT Page for details and pictures. Stay TUNED for FUTURE EVENTS! Patient Point of View. Parent Point of View. Web Policies & Disclaimer. Red Lily Foundation is a non-profit organization incorporated in NJ. Red Lily Foundation is a 501(c)(3) public charity. Photography Shutterstock Design by 5 After 9.
redlilyfoundation.org
Red Lily Foundation | Past Events
http://redlilyfoundation.org/past-events
Patient Point of View. Parent Point of View. March 18th, 2014. Salon in Madison hosted a fundraiser for the Red Lily Foundation on Wednesday, November 14th. Proceeds from the sold out event were donated to Red Lily Foundation to help fund research into the causes and treatment of Postural Orthostatic Tachycardia Syndrome (POTS). The event on November 14th, was a smashing success! And Long Valley’s Home: European Fine Furniture. We give a very special Thank You to Salvatore Minardi for his continued encou...
redlilyfoundation.org
Red Lily Foundation | Board Members
http://redlilyfoundation.org/the_mission/board-members
Patient Point of View. Parent Point of View. A very special group. A very special group of friends and relatives came together to create the Red Lily Foundation. It is with the most sincere and heartfelt gratitude that we acknowledge their unending support. They have generously dedicated their time, their talents and their heart to make Red Lily Foundation a reality. We will be forever grateful to this founding group. Our Founders and Executive Board Members. Mark J. Miller. Mark J. Miller is the Dir...
redlilyfoundation.org
Red Lily Foundation | For Patients
http://redlilyfoundation.org/for-patient
Patient Point of View. Parent Point of View. Red Lily Foundation is focused on research but was founded by a family affected by POTS. They know the difficulties finding reliable information. Below is some basic information for patients including a general brochure and three videos. The videos vary from a medical seminar and patient interviews to changes that occur while living with POTS. For support and in turn, please support them in any way you can. Patient’s Interview with Dr. Blair P. G...In our expe...
redlilyfoundation.org
Red Lily Foundation | For Physicians
http://redlilyfoundation.org/for-the-physicians
Patient Point of View. Parent Point of View. A growing library for physicians and medical professionals. Part of the Red Lily mission is to improve physician education and to that end we have started a small library of videos, article links and PDFs targeting POTS and related disorders. Our Medical Council, Dr Peter C Rowe and Dr Satish R Raj, have recommended the reading below and will continue to recommend educational and peer-reviewed articles throughout their tenure. Author manuscript; available in.
redlilyfoundation.org
Red Lily Foundation | The Mission
http://redlilyfoundation.org/the_mission
Patient Point of View. Parent Point of View. Red Lily Foundation is devoted to finding the cause and treatment for POTS and related disorders. The foundation will provide funding for promising research in the field. The research being conducted at the country’s leading health institutions is unveiling the many complexities of this disorder and holds great promise that a cure is within our reach. Your contribution can be life altering to those affected by this debilitating disorder. Several national cente...
redlilyfoundation.org
Red Lily Foundation | Donate
http://redlilyfoundation.org/donate
Patient Point of View. Parent Point of View. Your gift to Red Lily helps to support multiple initiatives:. Uncovering the contributing factors of POTS and related disorders. Discovering appropriate treatment modalities for the various forms of POTS and related disorders. Investing time and expertise toward a cure for POTS and related disorders. Education for healthcare practitioners. About the proper diagnosis of POTS and recognition of related disorders. Other ways to donate. Patient Point of View.
redlilyfoundation.org
Red Lily Foundation | About Us
http://redlilyfoundation.org/home/about-u
Patient Point of View. Parent Point of View. Surely someone can figure this out. This is a smart country with a lot of really smart people.”. Those words were the seeds to Red Lily Foundation. And so, the seeds for Red Lily were planted. Meghan has seen the most intelligent and compassionate doctors in the country all trying their best to help. But answers are not there, not yet. And so, why RED LILY. What’s in the name? 5K Run/Walk To STAND. Was a GREAT SUCCESS! Visit EVENT Page for details and pictures.
redlilyfoundation.org
Red Lily Foundation | Parent Point of View
http://redlilyfoundation.org/what-is-pots/parent-point-of-view
Patient Point of View. Parent Point of View. My name is Susan Miller. My youngest daughter, Meghan, is 18. She’s beautiful but doesn’t like me to say it, so instead let me describe her for you. She has a river of red hair that contrasts with her pale white skin, so clear she looks like a fairy-tale character but she’s a teen; take my word for it. Now that I’ve properly embarrassed her, I can tell you something else. She has too many memories of doctor’s offices. She has too few of normal teen life. And t...
